29th July 2015
The mix of emails I get everyday is amazing. Some are very sad and some make me very happy. The best are when I hear from people who have just passed the four week mark in their treatment using Indian generic Sofosbuvir and have received the results of their blood tests. I get those virtually every day now and this morning I got one of those from an English citizen whose doctor in the UK refused to write a script. Not deterred this person went to Spain and found a doctor who was a bit more educated in the 21st century world of international pharmaceutical. He wrote the prescription and is monitoring the treatment. Please read this and you will see why I get SO frustrated with doctors who think that there is something wrong with medicine just because it is not manufactured by white people living in Switzerland.
I have just had a phone call from my Doctor. He cant believe it. He has checked and double checked but I am completely virus free!!
I could cry. I am SO happy.
Ok. My lungs are a bit shot from past behavior, but i am a fit 55 yr old
That's after only 3 weeks Greg! Unheard of!
I had an incredibly high viral load - it was 10.5 million (thingy's per blood thingy). Now zero!
Bilirubin down a little to 3.8 (direct)
Pancreas enzymes up a little but he is hoping its just a blip with the medication.
I must finish it all!!
This person has Hep C genotype 3 and is doing the Sofosbuvir and Ribavirin treatment for 24 weeks. The tests were done by the German Pathology and Microbiology group Medizinisches Versorgungszentrum
Now compare that email with this one:
Greg, I am writing on behalf of a friend in the UK. He is in a difficult situation with HCV which he has had for many years and cannot seem to obtain treatment in Britain. We have spoken of the possibility of treatment in India but he is reluctant to travel there and is reticent to try Indian drugs from the Internet, however, your blog gives him new hope. If you are willing please forward me the information needed so that he can obtain treatment. Thank you and thank you for being open and generous with your treatment blog, you give heart to many people. Regards ####
So we have this situation were people from the UK have to go to Spain or India to get medicines that are legally available to them in the UK but they can not get a UK doctor to prescribe the meds. What is going on???
Then we have the recent situation where a friend of mine was booted off a UK Hep C forum for posting a link to my website!!!
So we come back to this issue of who is running these forums and what are their agendas? Are they there to help people get cured from Hep C or are they there to instill fear in people and make sure no-one buys Indian generics but instead sits around hoping that one day the government will give them some American made medicine?
Seriously it drives me nuts. Every person who I know that I have helped to get India generic Hep C medication has had fabulous results. In Australia now there are three major liver clinics giving full support to patients who are using Indian generics as well as at least that number of liver specialists. Most doctors (not all) here will now write a prescription to help their patients get generic Sofosbuvir and Ribavirin from India. Why is that happening? Because in the last 8 weeks more than 100 people with Hep C in Australia have been successfully treated with these medicines with outstanding results.
Yes I know the results still have to be tested over 12 months and then 24 months for a confirmed SVR but the early indications are outstanding. Meanwhile in the UK and the USA and Canada people are dying because their bloody doctors are too conservative, too narrow minded, to see that there is a cure for their patients right there in front of their noses, all they have to do is write the script and monitor the treatment.
Sorry for ranting but I am passionate about this and the stupidity of this situation drive me nuts!!!!
31st July 2015
My Liver Function Test Results for week 8
These test results below show my liver enzymes from September 2014 through to day. As you will see, after 8 weeks of treatment with generic Sofosbuvir and Ribavirin all my liver levels are perfect, they could not be better and I am stoked.
I wish that by this time next year that everyone with Hep C could access the new generation of Anti-viral drugs, whether through a government health program, a health insurance policy or by buying Indian generics.
Of course I know this is a dream because even the Indian generics are too expensive for most people in many countries to be able to afford.
It saddens me.
Hep C Advocate Groups: Who is advocating for what?
As I have mentioned before, some of the large Hep C advocacy groups receive significant, sometimes massive, funding from the big drug companies, and that is only what we know about, the above board funding.
So it is no surprise to see some of these groups pushing the fear campaigns against people accessing affordable Indian Generic medicines. Remembering that these drugs are licensed by their US based patent holders. For example Indian generic Daclatasvir is licensed by Bristol Myer Squib the who own the patent and trade name for Daclatasvir, which is Daklinza.
An example of the anti-generics/anti-India push is found in an article published on the Hepatitis C website, Hepatitisc.net entitled:
"Medical Tourism with HCV"
Medical Tourism isn't a solution to getting treatment for Hepatitis C
The logic of this article, by Rick Nash, is so full of errors and flaws it is either incredibly naive or deliberately constructed to bamboozle people. The article claims that if people from Western countries go to India to get affordable Hep C medication this somehow limits local peoples access to the drugs. This is complete nonsense. It is like saying if I go to India and buy a T shirt that means a local person will miss out on a T shirt. The reality is that there is a local market and a market for tourists and people will make T shirts for the tourist market and T shirts for the local market and they will be different prices.
There are seven licensed manufacturers of Sofosbuvir in India, they can produce as much Sofosbuvir as they like and sell it in at least 100 countries, including India. There is no limit to the amount of Sofosbuvir these companies can make. Then there are the unlicensed manufacturers who can make Sofosbuvir legally in India because it is not covered by patents. They can also make as much as they want and sell at what ever price they want.
Then Rick pushes the fear barrow, big time, he claims that a person is breaking the law if he or she imports medication for personal use. This is also utter rubbish. He claims that such a person might face jail of massive fines. Again this is just not true.
The US law code he quotes is Title 21, 333 Penalties. I just spent an hour studying this code and the directly related laws and they have nothing what so ever to do with the importation of generic medicines from another country for personal use. Either Rick has not taken the time to read the relevant sections of the code or he has misunderstood them or he is being misinformed by a third party.
So this article appears to be another example of people and organizations attempting to dissuade people from going to India to get affordable and effective treatment for their Hep C. As I have been to India as a medical tourist only ten weeks ago with profoundly pleasing results I find it both astounding and distressing that such an inaccurate article could come from an organization purporting to be advocating for and on behalf of people infected with Hep C.
I should also add that since I have returned from India I have helped people from third world countries like Venezuela, Cambodia, Indonesia, Vietnam, Thailand, Malaysia, China, Panama, Africa as well as low income countries such as Romania and other Eastern European countries to access these generic Hep C medications. I have helped them by giving them the contact details of honest, reliable suppliers so they can either go to India and buy them or get them couriered to their home. Whichever suits them better.
I ask again "Who are these people really advocating for?"
2nd August 2015
Well only two weeks to go until the end of my treatment.
I guess it is time for a review of the last ten weeks.
Firstly at week ten I have had no detectable virus in my system for 6 weeks and my liver function test results are better than they have ever been in my life. All enzymes well inside the normal range.
First the treatment. I have Hep C genotype 2. If there is anything lucky about finding out one has Hep C it is finding out that it is Genotype 2. The easiest to kill!
So I began taking one tablet of generic Indian Sofosbuvir each day along with 6 tablets of Ribavirin. Three Riba with breakfast, three with dinner.
Now here I must say that I heard a lot about the side effects of Ribavirin when I started my treatment but my experience of those side effects has been minimal, they have been slight. Talking to other folk that started treatment about the same time as me most have had the same experience with Ribavirin. The exceptions seems to be when people are on other medication for other health issues. These folk seem to do it tough. It is my belief that if you are in reasonable health and not on other medication then the Sof/Riba treatment is pretty smooth sailing. The thing I would add, and its just my thoughts, is that one should make sure that the Ribavirin is taken with a good deal of food. Of course the label says take it with food but I am saying not with a light snack or a nibble, a proper meal, so there is plenty of food in the belly when the Riba hits the digestive juices. With the meal not after or before the meal.
The other two big issues with Ribavirin that the nurse at the Hobart Hepatitis clinic made certain I was aware of were:
1. Beware of anemia.
2. If you are of the age where you might be thinking about having kids don't do it while you are taking Ribavirin. There is a growing body of evidence that suggests Ribavirin may store in the male and female reproductive system and it takes a while for it to leave the system. So if you are in the reproductive phase of your life talk to your doctor about.
What about the side effects?
First a bit of insomnia, but that settled down when I got in the habit of doing 20 minutes or so of yoga before bed. I still wake up a bit in the night but mostly get back to sleep.
Next the famous Riba Rage. Yes I am aware of this. Once I had just swallowed my evening dose of Ribavirin when I had to talk on the phone with Western Union. I blew my top!!! I was so insane that I was weeping and screaming at the same time... whoops. Sorry Western Union guy. I probably wrote a few things on this blog when I was a little too fired up with Ribavirin as well. But with all that if you warn your friends and family that this might be an issue they probably (hopefully) will understand when you say things you later wish you had not.
Typing skills: yes my typing has suffered dramatically. I just finished writing two books and my Master's thesis. I do a lot of typing. If I had been on Ribavirin while writing my thesis it would have taken me ten years to finish it. Ribavirin definitely caused me to type words back the front. Thank God for spell checker!
That's about it, my hemoglobin count was normal, no other dramas.
Just to explain these results for people not familiar with the LFT:
The main liver enzymes that are monitored are ALP, Gamma GT and ALT. As you can see in September 2014 all my levels were through the roof, which is why the doctors all thought I had liver cancer. When I gave up drinking alcohol and made dietary and lifestyle changes my results improved but were still very, very high.
My first test after beginning treatment was at day 11. This tested showed that all my liver enzyme levels except Gamma GT had dropped to normal ranges. By week 8 the results showed that my liver was probably as healthy as it has been since I was a child. These are spectacular results that other people I know using Indian generic Hep C medicines are are getting.
Generic Indian Daclatasvir
Bristol Myer Squib are the patent owners of the anti-viral drug Daclatasvir which they sell under the brand name of Daklinza. BMS recently entered a licensing agreement with the Indian pharmaceutical manufacturer Natco to make a generic version of Daclatasvir in India. This generic is chemically identical to Daklinza but sells for about 10% of the price of Daklinza, around US$500 in India.
For more information on licensed generic Sofosbuvir and Daclatasvir from India please click this link which will give you prices for Sofosbuvir and Daclatasvir and information of the processes for acquiring these life saving drugs.
Buying Licensed Generic Daclatasvir From India
If you are from the USA, Europe or nearly any other place on Earth I can help you get genuine licensed generic Daclatasvir as well as Sofosburvir.
The maximum you will pay for a 12 week supply of generic Daclatasvir (84 tablets) is US$500. Combined with licensed generic Sofosbuvir the total price for a 12 week treatment of Sofosbuvir + Daclatasvir will not be more than US$1,300 including delivery to your door and all other costs.
For the latest information on buying generic Daclatasvir from India, including the exact price, processes and availability of generics in your country please either use this link or email me direct. I am also happy to personally answer any questions you might have.
For more general information about the global Hep C situation please read my Blog, which continues below.